
Additional Resources
Living with chronic illnesses can be extremely tough at the best of times, it is important to put yourself first and get the right support.
Disclaimer; I am not a qualified councillor or medical professional, so please contact your relevant medical team or charity for help. For emergencies; please call 999 or attend your nearest A&E.
Ehlers Danlos Syndrome
Ehlers Danlos Society - online resources
Ehlers Danlos Support UK - helpline and support groups available
Hypermobility Syndromes Association - online resources
EDS Co-morbidity Charities
Bladder Health UK- helpline available
Bladder and bowel UK- online resources
Endometriosis UK - online resources
Guts UK - online resources
Pain UK - online resources
PINNT - online resources ​and support groups
POTS UK - online resources and support groups available
Versus Arthritis - helpline available
Mental health
C.A.L.M - helpline available
Mind - emergency advice and crisis resources
Papyrus UK - helpline available
PTSD UK - online resources
Samaritans - helpline available
Shout - texting service available
Disability
Astriid - helpline available
Citizens advice - offer financial advice via helpline or in-person
Disability Rights UK - online resources
NHS website - information and advice on health conditions
Scope UK - helpline and online resources available
Has another charity helped you that isn't listed above? Please let me know, the more support, the better!